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2001-now: The awakening

In spring 2001, Northrop Grumman was in the midst of selling off most of the 600-acre Bethpage home of Grumman Aerospace, the defense giant it gobbled up a few years before.

As workers conducted routine soil tests, they made a discovery that jolted the company and the community.

They found the toxic industrial compound polychlorinated biphenyl, or PCB, on the site’s far eastern boundary. While such chemicals had long been identified in the heart of Grumman’s plant, this was on the fringe of Bethpage Community Park, a buzzing core of local activity built on land Grumman had donated to the Town of Oyster Bay four decades prior.

“Implications of PCB contamination within the park itself are enormous,” Northrop Grumman said in a May 2001 internal presentation.

The company was not overestimating matters.

On May 2, 2002, the town padlocked the 18-acre park after confirming that PCBs and various metals, including chromium, were present in the soil.

Its former ballfield, where generations of Bethpage children played, had been Grumman’s literal dumping ground, once described by the company as an “open pit” for its wastewater sludges and solvent-soaked rags.

The field remains closed today, a 3.5-acre scar in the middle of the community, still too filled with dangerous chemicals to use.

“No other town has something like that,” said John Coumatos, a local restaurant owner and Bethpage Water District commissioner. Of Grumman, he remarked: “They won a war — they won two wars, and we’re stuck with what’s left over. It’s not fair to us.”

From the moment the town shut the park — with then-Supervisor John Venditto saying, “Would I want one of my children sliding into home plate?” — the people of Bethpage have taken on the massive pollution problem with a new combativeness.

Nearly 900 people jammed the local middle school for the first public meeting after the closure. Some asked for their children to receive blood tests.

Years of public outcry, lawsuits and aggressiveness by local politicians followed until the state last year approved a $585 million plan for all but eliminating what has become Long Island’s greatest environmental crisis.

The plan is a sea change from past efforts by the state Department of Environmental Conservation, which had misjudged and failed to halt the spread of the groundwater pollution, all while relying heavily on flawed analyses provided by Grumman and its successor company, Northrop Grumman.

“The ballfield — the Bethpage Community Park — I think just kind of woke everybody up,” said Stephen Campagne, 65, a retired Con Edison worker who has lived in Bethpage for 40 years.

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Stephen Campagne in his sister’s Bethpage home in February. Photo credit: Johnny Milano

A year after discovery of the park contamination, a report by a Northrop Grumman consultant, Dvirka and Bartilucci, laid out the full extent of the toxic dumping there. It found that wastewater sludge “was transported to the park property and placed in one of two sludge drying beds”; that “spent rags generated during the wipe-down of a paint booth water curtain” were “emptied into a pit located on the property”; and that the land was “utilized as a fire training area where waste oil and jet fuel were ignited and extinguished.”

And the soil contamination all that caused wasn’t the worst of it.

In 2007, Bethpage Water District consultants were reviewing data from a U.S. Navy monitoring well just south of the park. They found the carcinogenic metal degreasing solvent trichloroethylene, or TCE, in the groundwater at 6,300 parts per billion — more than a thousand times higher than the state limit for drinking water and far more than its closest treatment system could handle.

The state identified this in 2009 as emanating from the ballfield, a clear indication the park was the source of a second plume, deeper and more contaminated than the well-established one that had poured out from Grumman’s old manufacturing grounds.

For Bethpage and the communities to the south, the discovery was deeply distressing. It meant a still greater spread of groundwater contaminants and more concerns about the possible health effects, despite local water providers’ assurances that they remove anything dangerous from what’s delivered to taps.

For Northrop Grumman the concern grew, too. Under the state Superfund law governing hazardous waste sites, the company’s responsibility rose from simply cleaning the park’s soil to treating an even larger and still spreading mass of carcinogens.

The divisions between the community and the polluters also widened. As far back as 1976, the Nassau County Health Department and Grumman’s own consultants had identified troubling deposits of TCE on company grounds. And by 1989, Grumman had begun a substantial effort to extract the contaminants .

But during all those years of growing concerns, no records were found in which any Grumman or government official seemed to ask, in a meaningful way, “What about the park?”

The Newsday investigation identified only two instances, both in the 1990s, in which anyone had tested Bethpage Community Park. Those, by the Navy and town, literally went little beyond scratching the surface.

‘May continue to dump’

Part of the 18 acres of undeveloped land at Grumman’s northeast corner by the late 1940s became, in the words of an employee at the time, a “remotely located open pit” to dump its various wastes.

Aerial photographs from this era show the dirt from this portion becoming progressively darker and, as the company later put it, more “disturbed.”

This use wasn’t against the law, and none of it seemed to be of concern at the dawn of the 1960s, when the Town of Oyster Bay sought land in Bethpage for a new  park. So in October 1962,Grumman gifted the parcel to the town for a community gathering spot that would include a playground, swimming pool and ballfields.

When the park opened two years later, Grumman insisted on a commemoration plaque, which still is displayed next to the swimming pool.

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A dedication plaque at Bethpage Community Park memorializes that the property was donated by Grumman. Photo credit: Newsday / Steve Pfost

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Weeds grow behind the fence closing off the abandoned ballfield at the park. Photo credit: Newsday / Steve Pfost

“This appears to be a suitable site,” town Supervisor John J. Burns had told Newsday in December 1961, when the donation was first proposed. In a photograph that memorialized the land transfer months later, the supervisor smiles alongside Grumman’s then-president.

By the time the deal closed , Burns knew more about the land than he had indicated.

“Grumman may continue to discharge the non-toxic liquid waste currently being discharged into the sump, and may continue to dump clean fill on the land as heretofre [sic], until the further discharge of such liquid waste and further dumping of such fill will in the Town’s opinion impede development of the land,” Burns wrote in a 1962 letter to Grumman, obtained under a state Freedom of Information Law request and revealed for the first time.

The “non-toxic” reference indicates that the town was unaware that the waste posed any danger. Grumman, by available indications, could well have known otherwise.

“Grumman may continue to discharge the non-toxic liquid waste currently being discharged into the sump ….”

1962 letter from Town of Oyster Bay to Grumman See full letter

Nassau County in 1955 had alleged, in state filings related to Grumman’s application for new water wells, that even after the company treated wastewater dried on the future park property, it still contained the toxic metal chromium in levels that could contaminate the water supply.

In 2013, Northrop Grumman environmental consultants confirmed that the wastewater sludge dumped at the park also contained TCE, a volatile organic compound, or VOC, that wasn’t viewed as a danger in the early 1960s but is now the plume’s most prevalent contaminant.

“Whatever was disposed in the rag pit has contributed to VOCs to groundwater,” Michael Wolfert, a project director at the consulting firm, Arcadis Inc., said in a deposition taken in a federal lawsuit by Grumman’s former insurers.

The insurers, including the Travelers Cos., successfully argued that Grumman didn’t provide full or timely notice of potential claims it could face from its environmental practices.

Shifting blame

After the park was shuttered in 2002, Northrop Grumman expressed a willingness to work with the state on determining the extent of the soil contamination. But it also set off on a lengthy effort to limit its culpability and costs.

Its first line of attack was to try to shift cleanup responsibility to Oyster Bay and the Navy, which owned a portion of Grumman’s manufacturing facility that the company operated.

In letters to the state during the summer of 2002, Larry Leskovjan, then manager of environmental, health and safety for the company, acknowledged that Grumman engaged in “the drying of metal-bearing sludges” at the future park site. Yet he argued that “the contaminants at issue related directly to Navy Industrial reserve programs and military manufacturing dictated by the government.”

The Navy, he added, conducted annual inspections of Grumman’s facility and therefore “gave at least tacit” approval of the company’s disposal practices.

In written responses to Northrop Grumman, the Navy said there was “little to no relevant evidence” to back up those assertions.  

And because Burns’ 1962 letter indicated that Grumman could continue some dumping at the site, Leskovjan wrote, “the town was aware that certain wastes and clean fill were being placed on the property.” He also suggested that Oyster Bay could have brought in its own contaminated fill after receiving the land.

The company later acknowledged it had no proof of the last point, though some coolant later leaked from the park’s old ice-skating rink, which the town is responsible for cleaning up.

“In summary, Northrop Grumman believes that the Navy and Town should be considered potentially responsible parties with respect to the Bethpage Community Park contamination.”

2002 letter from Northrop Grumman to state DEC See full letter

Three years after Northrop Grumman first attempted to shift blame , Oyster Bay sued the company and the Navy over the contamination.

At the same time, the town worked with the state to expedite the cleanup of a seven-acre portion of the park, farthest from the ballfields, where it built a new ice-skating rink.

Aware of residents’ concerns, the town pressed for “mass” soil excavation of up to 10 feet, which it deemed necessary for long-term safety and the possibility of future uses, including residential. The state — which for  years had endorsed overall cleanup measures often criticized as too limited — recommended a more targeted plan, costing $6 million, that would have left most soil in place. This, it concluded, would be “fully protective of human health and cost-effective.”

The town’s plan cost nearly four times as much, or $22 million. Defending itself in the town’s lawsuit, Northrop Grumman pointed to this battle between Oyster Bay and the state, asking for a judgment that it wouldn’t have to cover the town’s cleanup portion because it was excessive.

It dismissed the town’s argument about potential future uses by noting that the park’s deed stated the land would revert to Grumman if it ceased being publicly owned.

In May 2009, then-U.S. District Court Judge Thomas C. Platt granted the company’s request, ruling that the town’s plan was “plainly excessive.”

The judge did not order the company to cover the $6 million cost of the lesser plan, and Oyster Bay spokesman Brian Nevin told Newsday last month that Northrop Grumman has never offered to pay for it.

Breaking point

As Oyster Bay was fighting Northrop Grumman on one front, Anthony Sabino, the longtime lawyer for the Bethpage Water District, was engaging the company on another.

By 2009, the new park contamination led the water district to conclude that the treatment system on one of its drinking water wells, funded by Grumman in the early 1990s, was no longer sufficient. It wanted Northrop Grumman to pay millions of dollars for an upgrade.

The company didn’t share the district’s concern. In a series of letters, it cited its own projections of the plume’s movement and argued that it did not pose an imminent threat to the district wells.

“In fact, Northrop Grumman’s consultants cannot identify what facts form the basis of the Water District’s claim that there is now an emergency situation,” a company lawyer wrote to the district.

Negotiations hadn’t gotten anywhere by 2010 when Sabino took his case to Sen. Chuck Schumer (D-N.Y.). Northrop Grumman, he wrote, “steadfastly refuses to be responsible for these necessary improvements based on a groundwater model that has consistently, without exception, underestimated the direction, depth, concentration of plume contaminants and the plume’s impact on down gradient water suppliers.”

He continued: “This perfect record of failure can not [sic] be coincidence,” labeling the company’s computer modeling of the plume “liability driven,” with the goal “of shifting liability from the responsible parties to the residents of Bethpage.”

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Anthony Sabino, attorney for the Bethpage Water District, speaks before a packed house at Bethpage High School during a June 2012 meeting about groundwater at the Community Park. Photo credit: Daniel Goodrich

Northrop Grumman, meanwhile, sought to discredit other information — including its own — that could increase its liability.

Back in 2003, the Northrop Grumman consultant Dvirka and Bartilucci had provided its vivid description of how the Bethpage Community Park ballfield came to be so polluted, pointing to the wastewater sludge placed in drying beds, the “spent rags” “emptied into a pit” and the fire training area there.

After discovery of the park plume, a second company consultant, Arcadis Inc., knocked down those findings.

“Apparent historical activities were not well understood or documented,” the firm wrote as it developed the groundwater cleanup plan for the park, adding that the previous consultants’ history was “speculation.”

Steven Scharf, a state environmental project engineer, replied: “This is not the case at all. Grumman clearly presented information to the contrary in [a] previously submitted report.” He demanded that the company reflect the 2003 history in its new material.

“The Bethpage Community Park … and the surrounding areas, are well understood,” Scharf continued, adding that “historic use(s) of the Park property are well documented.”

What They Said

“The Park history and apparent historical activities are not well understood or documented.”

2011 report from Northrop Grumman consultant on Bethpage Community Park contamination, including a line first sent to regulators in 2008 See full page
What They Knew

“Wastewater treatment sludge … was transported to the Park property ….”

2003 report from Northrop Grumman consultant on Bethpage Community Park contamination See full page

Wolfert, one of the Arcadis employees responsible for the revision, said in his 2013 deposition in the Travelers insurance case that Northrop Grumman had directed him to make the change because the 2003 account had relied on anecdotal recollections from employees at the time.

“They therefore wanted to modify the site history to not look like it was so definitively known,” Wolfert said in the deposition, adding later that the company did not require him to do any further investigation of the site history.

Plume model assailed

Most critical in the state’s decisions on how to attack the plume was a computer model developed by the company’s longtime consultant, Geraghty and Miller, later absorbed by Arcadis.

It would finally be discredited when Schumer and local water providers in 2010 prevailed upon the U.S. Environmental Protection Agency and U.S. Geological Survey to launch a review.

The tensions between Schumer and the state were palpable at the time, observers remember.

Judith Enck, the EPA’s then-regional administrator, recalled attending a September 2010 meeting on the plume organized by Schumer, and being pulled aside by a Long Island-based state environmental official.

“‘They’re getting pushed around by the Navy and Grumman,’” she recalled the person telling her of department leadership in Albany. “The state doesn’t seem capable of standing up to the Navy and Grumman.”

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Bethpage Water District Superintendent Michael Boufis, left, gives a tour of Bethpage Water District’s Plant 6 to Sen. Chuck Schumer (D-N.Y.), center, and then-Navy Secretary Richard Spencer in September 2017. Photo credit: Newsday / Alejandra Villa

Enck said she had the same impression attending the meeting. “Usually, when you have Senator Schumer banging on the table, people are responsive,” she said recently. “The state took it as a state site and did not want any federal oversight.”

In a recent interview, Pete Grannis, the state environmental conservation commissioner from 2007 to 2010, maintained that his staff was not being run over by the polluters. Rather, he said, they were grappling with what had also confounded numerous past administrations. (The prior environmental commissioners could not be reached or did not return requests for comment.)

“This is something that at the time was thought to be somewhat of an intractable problem that sort of defied a solution that we could do and afford,” Grannis said. “We had serious questions about whether it could be contained and, if not, then what could be done to protect the drinking water as this moved.

“We didn’t have a very clear picture of what we could do about it.”

Federal environmental officials’ review of the long-standing plume model was pivotal.

In a 2010 memo, the EPA concluded it should “not be used to attempt to make a reliable prediction of potential impacts on public supply wells.”

Citing several inaccurate predictions, the agency, along with the geological survey, determined in a final 2011 report that the model simulated future movement in an “incomplete” manner and “ignores information” such as the impacts of public supply groundwater pumping and discharges from treatment systems.

“That was a big turning point,” said Carey, the Massapequa Water superintendent. “It ratcheted things up to say, ‘Hey, look, we have the federal government saying now that the model that you used was flawed and that we really need to start this over and look to take a new look.”

Another limited step

A change in approach from the state wasn’t immediate.

Its 2013 plan to address the park contamination proposed spending more than $60 million beyond the cost of earlier state cleanup decisions, which had covered soil contamination on the Grumman site and the original groundwater plume spilling out of that property. But the new plan didn’t go as far as local water providers sought.

It included cleaning the park’s ballfield of contaminated soil — a project that still hasn’t been completed.

It also called for cleanup of contaminated soil in residential yards next to a former Grumman access road. The state had found PCB contamination up to 58 times current state standards  in 2002. By 2016, Northrop Grumman had removed soil contaminated with PCBs and chromium from the yards of 30 homes.

When it came to groundwater, the 2013 plan required Northrop Grumman to continue running a contaminant extraction system at the boundary of the park — similar to the one it has operated at its original plant boundaries — to stop further migration. Since 2009, that has pumped 300,000 gallons a day of tainted water and removed 2,200 pounds of toxic chemicals, the state estimates.

The plan called, too, for new off-site extraction systems at “hot spots” of high contamination south of the park, including one that Grumman finally hopes to complete in 2021. It will be the company’s first comprehensive remedial effort outside of properties it once owned.

But, as with prior cleanup decisions, the state chose not to endorse full plume containment , which would have cost more than $200 million and have involved an extensive series of extraction wells and piping.

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Residents and local officials express frustration with the cleanup at a November 2019 public meeting in Bethpage. Photo credit: Yeong-Ung Yang

“It’s the best alternative that we can come up with,” a state public health specialist, Steven Karpinski, said at a public hearing where the plan was criticized by residents and elected officials.

Northrop Grumman endorsed the state’s approach in a public comment included in the plan document: “The NYSDEC groundwater remedy is appropriate with some minor modifications.”

By this point, however, public knowledge, concern and outrage were erupting.

The new state effort got far more media attention than any prior ones, and the Bethpage Water District was becoming more vocal in airing its grievances, including the discovery of elevated radium levels in one of its wells.

At the same time, a state study of cancer in part of Bethpage — finding no higher overall rates — was released nearly four years after toxic soil vapors had been found near some homes.

In a 2013 email to state environmental officials, Bethpage resident Rosalie Romano asked, “Why has the NYS DEC not been acting in the best interests of the residents of Bethpage?”

George Hignell, another longtime Bethpage resident, wrote to then-Nassau District Attorney Kathleen Rice in a pleading email that asked her to investigate why the problem had been obscured. He cited the deaths of his parents and numerous neighbors to cancer and compared the growing groundwater contamination to one of the nation’s most infamous cases of industrial pollution.

“We are the new ‘Love Canal,’” Hignell wrote, referencing the massive contamination and evacuation of a community near Buffalo. “We need you to help us. Please.”

Aides to Rice, now a congresswoman, said there’s no record of her office opening an investigation.

‘Master of delay’

As the pressure was rising for something more to be done, Northrop Grumman was still fighting calls for it to do — and pay— more. Nowhere was this more visible than in another courtroom skirmish, this time with the Bethpage Water District.

The district wanted nearly $10 million to protect the public well it identified as being threatened by contamination from the park plume. It had discovered the park contamination six years before, in 2007, and started negotiating in earnest in 2009.

Early on, Sabino recalled feeling the strong implication from Northrop Grumman, passed along from elected officials in the area, that the company would relocate its 2,500 employees still based in Bethpage and blame the district if it continued to push for compensation.

At the peak of the recession, few wanted to call the company’s bluff.

“We should have hit them hard when we had the chance,” said John Sullivan, a district water commissioner. “But we would have taken the brunt of it.”

The district finally filed a lawsuit in 2013. Sabino was feeling confident, even though the district had 12 full-time employees and a budget of a few million dollars a year and  was going up against a multinational corporation with almost $25 billion in revenue and 85,000 employees.

Well before the suit was filed, he wrote in an email to Schumer’s office: “The complaint is substantial, and the public announcement of the lawsuit will definitely embarrass Grumman and the Navy. Between the lines, it is also embarrassing to the NYSDEC who has regulated this site for 20 years with little remediation of the plume and less assistance to the affected water suppliers.”

“The complaint is substantial, and the public announcement of the lawsuit will definitely embarrass Grumman and the Navy. Between the lines, it is also embarrassing to the NYSDEC who has regulated this site for 20 years with little remediation of the plume and less assistance to the affected public water suppliers.”

2012 email from Bethpage Water District attorney to Sen. Chuck Schumer’s office See full email

The time spent in negotiations, however, proved fatal to the district’s case.

Northrop Grumman argued that officials had three years from the discovery of the park plume to file a claim. A judge agreed, and the district’s ratepayers footed the bill for the upgraded well treatment.  

“They are the master of delay,” district superintendent Michael Boufis reflected recently, as he reached for a David vs. Goliath analogy. “This is biblical, what’s going on here.”

To the south, Massapequa Water District has been watching.

Stan Carey, the district superintendent, said it has resisted putting the same expensive contaminant treatment systems on its wells while pushing the state to contain the plume. But estimates have the mass reaching Massapequa’s early detection wells in as little as two years.

“At some point you have to start pulling it out of the ground and cleaning it up,” Carey said.

‘I said ‘no’

In 2014, Joseph Saladino, then Massapequa’s Republican assemblyman, convinced the Democratic-led Assembly to pass his long-stalled bill authorizing a feasibility study for a system of hydraulic wells that would fully contain the plume at its southern edge. It was similar to proposals the state, Northrop Grumman and the Navy for years had called too costly and unworkable.

But with increased pressure from residents — and against the backdrop of the drinking water crisis in Flint, Michigan — the political climate had turned.

The Senate passed the law in June 2014. Gov. Andrew M. Cuomo signed it into law in the last days of the year, overriding concerns by his former environmental leadership.

Saladino, now Oyster Bay town supervisor, recalled seeing Cuomo at the wake of his father, former Gov. Mario Cuomo, in January 2015, where the governor told him, “You know, they told me to veto your bill. And I said ‘no.’”

That decision set off a new era of action by the state. Cuomo named Basil Seggos, a longtime environmentalist who had served in Cuomo’s office, the department’s commissioner and committed to a tougher approach later in 2015.

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Basil Seggos, commissioner of New York State Department of Environmental Conservation, says the state will fight to push through its $585 million cleanup plan. Photo credit: James Carbone

In a recent interview, Seggos reflected on the longtime stances of Northrop Grumman and the Navy. “They tend to get into cruise control unless poked and prodded,” he said. “I believe that’s where they were.

“In the meantime, happening on the outside was a sea change in the way that the state was approaching environmental problems. You had this incredible awareness about drinking water problems nationally, certainly here in New York.”

The $585 million state cleanup plan relies on a complex network of new pipes, treatment facilities and containment wells, similar to what the study spurred by Saladino’s bill had said was feasible.

The state says it will take Northrop Grumman and the Navy to court if they refuse to pay.

More than 1,000 residents, meanwhile, have joined class-action and personal injury lawsuits, primarily against Northrop Grumman, that allege their health ailments are a result of the contamination. The company denies responsibility, and the cases are pending in federal court.

As the fighting continues, the plume continues to grow, cleanup costs continue to rise and the health concerns continue to consume many residents.

“It’s the worst-case scenario in every way you can imagine,” said Sarah Meyland, director of the Center for Water Resources Management at New York Institute of Technology in Old Westbury. “The contamination in the groundwater system was known in the ’70s — clearly.”


Think you know Pilgrim Psychiatric Center? Go inside to see how drastically it’s changed.

A farm with a therapy llama, pig and goats …

A swimming pool, bowling alley and greenhouse …

This is what you’ll find at Pilgrim Psychiatric Center in Brentwood nowadays.

What was once a place that inspired fear and resembled some scenes from the Jack Nicholson film, “One Flew Over the Cuckoo’s Nest” …

Where thousands of patients were crowded inside, some enduring lobotomies and never leaving the complex …

Is now embracing modern approaches to mental health that give patients more control over their treatment and help them return to their lives outside Pilgrim.

Nearly 14,000 people lived on the sprawling grounds of Pilgrim Psychiatric Center in the Brentwood of the 1950s, an era when lobotomies and induced comas were viewed as acceptable treatments for mental illness.

Today, the state-run Pilgrim — once the world’s largest psychiatric center — is, with its 273 beds, a fragment of its former self. Unlike in the past, its approach to treatment now focuses on getting patients out of the hospital rather than keeping them in, and residents have input on their own care.

“The expectation then was to go into hospitals and stay there for years,” said Kathy O’Keefe, executive director of Pilgrim. Today, she said, “We ready people for discharge the minute they walk through the door.”

Pilgrim opened in 1931 on 825 acres of what was then countryside to relieve overcrowding at other state-run institutions. “A City of the Insane It Grows Every Day,” read a 1938 Life magazine headline about Pilgrim.

Pilgrim sits on about 300 acres and is the third-largest of the state’s 23 psychiatric centers. The center only treats people with the most severe needs. Most are diagnosed with schizophrenia, bipolar disorder or schizoaffective disorder, which is a combination of symptoms associated with schizophrenia and a mood disorder. In addition, they typically have complicating factors such as severe emotional trauma or substance abuse, or a low IQ, which makes insight into their condition more difficult, O’Keefe said.

The imposing 80-year-old center has homey touches, such as patient-decorated bedrooms. Yet the seven-story brick building has an institutional feel. With two-thirds of residents arriving as involuntary admissions — most because they are legally considered a danger to themselves; some a danger to others — it is highly secure, with locked patient wings and an entrance with two electronic doors.

It costs an average of $973 a day to treat and house each resident, O’Keefe said, and state figures put the total inpatient cost for the 2019-20 fiscal year at about $87 million. Pilgrim had annual budgets of about $12 million in 1954 and 1955, using mid-1950s dollars, Newsday reported then. There are about 1,000 employees today, O’Keefe said, compared with the 4,000 that Newsday reported worked there in the late 1950s.

Factors such as the rise of psychiatric medications, a push for expanded rights for mentally ill people, and media exposures of abuse and neglect spurred a decadeslong drop in the population of long-term psychiatric centers in New York and nationwide, said Nancy Tomes, a history professor at Stony Brook University who’s studied the mental health care system’s changes.

Elizabeth Hancq, research director for the Arlington, Virginia-based Treatment Advocacy Center, which promotes expanded access to treatment, said that, overall, the migration of people out of long-term institutions and into communities was positive.

But, she said, deinstitutionalization went too far, and there are far fewer long-term psychiatric beds than needed nationwide. “The evidence for the need for this longer-term care setting such as state hospitals or other 24-hour hospital-level care is seen every day throughout the country” in one third of homeless people and one fourth of jail inmates with serious mental illnesses, she said.

Most Pilgrim buildings were torn down years ago. Others remain vacant, boarded up and defaced by graffiti. The state in 2002 sold 452 acres to developer Jerry Wolkoff for his long-stalled Heartland Town Square project, which would include 9,000 residential units and office and retail space in Brentwood. The project is on hold because of lawsuits and Wolfkoff’s inability to get Suffolk County approval for a sewer connection.

For patients who remained at places like Pilgrim, after the exodus from large institutions began in the 1950s, there often was “a deadening quality” to life, Tomes said, with drugs that left them in a stupor, a paucity of fulfilling activities and a warehousing of people rather than any real attempt at treatment to prepare them for life on the outside.

The portrayal in Hollywood movies like “One Flew Over the Cuckoo’s Nest” of numbed, overmedicated residents cowed into docility was largely accurate, said Joseph Rogers, who has bipolar disorder and has spent decades helping lead Pennsylvania-based mental health organizations. Rogers said he lived “kind of in a walking coma” at a Florida psychiatric center in the early 1970s.

Since then, drugs have improved and have less severe side effects, O’Keefe said. Therapists at Pilgrim today discuss medication with patients rather than coerce them to take it. Only in rare cases involving dangerous patients is a court order sought to forcibly administer medications, she said.

Likewise, patients “are signing off on their treatment plan,” said Stephen Berg, Pilgrim’s director of operations.

Patient Story

He heard voices. He once set fire to his home. Pilgrim helped him 'come back to the world, the real world'

When Larry Euell Jr. was 18, he was convinced voices coming out of the radio were talking about him. Three years later, while in a rage, he started a fire in his bedroom and almost burned down his family’s house.

That fire culminated with him being sent to Pilgrim Psychiatric Center, where four years of treatment left Euell, now 34, of Hempstead, happier and optimistic.

“What Pilgrim did was transition me to come back to the world, the real world,” he said.

While at Pilgrim from 2011 to 2015, Euell was diagnosed with paranoid schizophrenia. “I thought I was going to be institutionalized for the rest of my life,” he said.

He is now studying fashion design at Nassau Community College — something he never thought would have been possible.

College attendance is “very obtainable by many people with this disorder, more people than we can probably appreciate,” said Dr. Lisa Dixon, a professor of psychiatry at the New York State Psychiatric Institute in Manhattan and an expert on schizophrenia. “For some people, this illness is highly disabling, but there’s a significant number of people who have this illness who are able to live very fulfilling lives.”

Public perceptions of individuals with schizophrenia often are inaccurate, research shows. About 60% of Americans incorrectly believe violence is a symptom of schizophrenia, according to a 2008 survey commissioned by the National Alliance on Mental Illness, an advocacy, education and support group based in Arlington, Virginia.

“At Pilgrim, I had to learn how to actually put my coping skills into action…”

Larry Euell Jr.

In reality, Dixon said, even though people with schizophrenia are slightly more likely to commit violent acts than the general population, the large majority of people with schizophrenia are not violent toward others.

The scarring on Euell’s face and arms are lifelong markers of when he was at his nadir. The paranoia was intense, the depression deep.

“I thought people were out to get me,” he said. “I thought everyone was against me. I didn’t feel I had any love. I didn’t think anyone loved me, even though my mom was very loving and supported me the best she could.”

One day when he was 19, he stayed up all night writing random words on a piece of paper and then started talking gibberish to his mother. She panicked and called the Nassau County mobile crisis team, which comprises social workers and nurses trained to help people with mental health emergencies. Following that crisis, he spent more than two weeks at two community psychiatric hospitals and, upon release, was prescribed medication, which he didn’t take because it made him drowsy.

As his paranoia increased, he said he stopped hanging out with some friends, thinking they had it in for him. In November 2006, he took 30 days of prescribed medication he had stashed in his drawers. It provoked a frenzy, causing him to shout, throw and break things, as he ran around the Hempstead house he shared with his mother, grandmother and three younger brothers.

“Everything kind of got to me,” he said. “The paranoia, the distorted thinking, thinking people were out to get me.”

While trashing his bedroom, he knocked a lit incense burner onto the carpet, starting a fire that consumed his bedroom, he said. Firefighters pulled him out of the charred room.

Euell was arrested and pleaded not responsible by reason of mental disease or defect to second-degree arson and reckless endangerment charges, according to court records. He was sent to the upstate Mid-Hudson Forensic Psychiatric Center, which provides mental health treatment for people sent by court order. At the time, he had a diagnosis of schizoaffective disorder; the diagnosis was changed to paranoid schnizophrenia at Pilgrim.

He referred to his four years at Mid-Hudson as “my wake-up call.”

“That was the beginning of me realizing I had a problem, and I needed to find a way to deal with it,” he added. “Before that, I felt I was just a regular person mad at the world.”

After Mid-Hudson, he spent the four years at Pilgrim. Therapists at Mid-Hudson made him realize his paranoia was a symptom of an illness, and that others were experiencing the same types of feelings. Euell said Pilgrim taught him how to use that insight and the anger management and other coping skills he had learned at Mid-Hudson to prepare him to live outside the walls of a psychiatric center.

“I had to learn how to actually put my coping skills into action, to calm my anxiousness,” he said.

He began understanding how to not let distractions get to him.

“With the paranoia, it all kind of hits you,” he said. “You could be in a crowded area and [feel that] everybody is just looking at you or something. You just have to focus on what you’re doing and get your task done.”

Medications — he takes the antipsychotic drug Haldol — help but they’re not enough, he said.

Euell took poetry and art classes at Pilgrim and began writing music, which gave him an outlet for his creativity. He felt confident enough to set a goal of attending college for fashion design, and that motivated him to study for the GED diploma he earned at Pilgrim. He hopes to attend the Fashion Institute of Technology in Manhattan.

“I have a real good focus now,” he said. “It’s like a beam. Nothing can penetrate the beam.”

Treatment sometimes is introduced gradually, to gain the resident’s acquiescence, and peer specialists — people who are in recovery from mental illness and work at Pilgrim — sometimes will talk with residents about the benefits, Berg said. Therapy, for example, “is only productive if the person really wants to be participating,” he said.

Zoe Pasquier, 38, a peer specialist at Pilgrim for more than six years, said she talks to residents about how therapy, medication and support groups can be helpful. She said sharing her own story can “create a safe space for someone to be able to share things, so maybe they won’t feel as judged.”

O’Keefe recently stood in a kitchen inside Pilgrim that is part of the center’s “discharge academy,” a program of typically eight to 10 weeks in which residents are taught meal preparation, shopping, budgeting, resume-writing and other skills they’ll need to live independently or semi-independently.

The academy illustrates the shift in emphasis toward moving residents out of Pilgrim to smaller group residences where they can live in a less institutional atmosphere, or to apartments where they may live with others or on their own, O’Keefe said. Often, a group residence is a transitional step toward independent living. People upon discharge are set up with outpatient treatment, and Pilgrim staff check up on them, O’Keefe said. Most former Pilgrim residents continue to need medication and some type of outpatient treatment after leaving the center, she said.

Several decades ago, it was common for people to spend the rest of their lives at Pilgrim after admission, O’Keefe said, and even at the turn of the millennium there was “a culture of … no rush to move people through. We wanted to fix everything about them before they got out of our hospital. We just don’t think that way anymore.”

A typical stay at Pilgrim today is six to nine months. A small number still stay years, especially if they continue to present a danger to themselves or others, O’Keefe said.

Patient Story

She always feared Pilgrim from afar, but it helped her regain control after 11 suicide attempts

Even in the depths of the depression and uncontrollable mania caused by her bipolar disorder, Alarece Matos couldn’t imagine herself at Pilgrim Psychiatric Center, a place she feared while growing up a few miles away.

“When you look at Pilgrim on the outside and you’ve never been there before, you think of ‘mental institution’ — those movies, you think of people running around screaming and throwing their hands in the air and hurting each other,” the Middle Island woman said. “You don’t think of a place where you can go and get help.”

After attempting suicide 11 times, losing job after job, and obtaining largely ineffective care seven times at shorter-term community psychiatric hospitals, Matos credits Pilgrim with turning her life around.

“I’m looking forward to going back to work and this time being able to keep a job,” said Matos, who is living independently and studying to earn a medical office administration certificate at Hunter Business School in Medford. “With the coping skills I have now, I’ve learned how to be able to function in society the way I should.”

Matos, 41, said she lost 10 jobs, mostly in telephone customer service, after customer complaints of either gushing friendliness when she was manic, or rudeness when she was depressed, or after bosses and co-workers became fed up with excessive perkiness one day and intense negativity the next.

“The times I would show up to work manic, they would think I was on drugs,” she said. “And there were times I was so depressed, I would call in sick because I didn’t want to be around anyone, I didn’t want to get up. With all the call-ins, you lose your job, because you become unreliable.”

“When I tell someone I’ve been to Pilgrim, they’re like, ‘Oh, God, you’ve been to Pilgrim?'”

Alarece Matos

Her typical stays of three to four weeks at community psychiatric hospitals provided temporary help, but after she left, she stopped taking her medication and didn’t keep appointments with outpatient therapists.

In late 2016, Matos was traumatized when a woman she believes had an untreated mental illness tried to kill her at a Brooklyn homeless shelter where the two were living.

Matos said she woke up one night to find the woman on top of her with her hands around her neck, trying to choke her. She was able to fight the woman off, and a few days later, she checked into Stony Brook University Hospital’s psychiatric unit, where a therapist’s description of Pilgrim’s approach to treatment dispelled Matos’ longtime fears about the center. She voluntarily checked in.

Matos said a key reason her six months at Pilgrim succeeded, where previous professional treatment failed, is peer specialists, people who work at Pilgrim who themselves have a diagnosed mental illness. They are trained to help those just entering recovery or early along in the process.

She could relate more to peer specialists than therapists and psychiatrists.

“It made it a lot easier because it wasn’t just someone saying, ‘Aw, you’re going to be OK,’ ” Matos said. “It’s someone actually telling you, ‘It’s going to be fine. I’ve been through this; it takes time, but you can do it.’ “

The emergence of peer specialists is one of the biggest changes at Pilgrim, said Kathy O’Keefe, the center’s executive director. As recently as two decades ago, the common thinking among mental health experts was that someone with a mental illness likely couldn’t help another person with a psychiatric disorder, O’Keefe said.

“Now, there’s an acknowledgment that having a community behind you keeps patients from feeling isolated,” said Stephen Berg, Pilgrim’s operations director.

Matos said the medication she takes — Latuda and Lamictal — and therapy have helped control her mania and depression. But they haven’t entirely eliminated them. Pilgrim taught her ways to cope.

“If I feel my mania coming on, I go for a walk” or call a family member, a former Pilgrim resident or peer specialist, she said.

While at Pilgrim, she began painting and meditating to help reduce anxiety and depression.

Matos regularly confronts misunderstandings about Pilgrim and mental illness.

“When I tell someone I’ve been to Pilgrim, they’re like, ‘Oh, God, you’ve been to Pilgrim? So you’re crazy?’ ” she said.

The stigma of mental illness — and of psychiatric centers such as Pilgrim — prevents many people from acknowledging even to themselves that they need help, Matos said.

Yet without Pilgrim, Matos believes the mania, depression and anxiety that she has struggled with for years would still be controlling her instead of her controlling them.

“Pilgrim helped me see it’s OK to be who you are,” she said. “It’s OK if people don’t understand. As long as you know who you are and you want to get better, that’s what’s important.”

A small percentage of Pilgrim patients arrive via the courts, and most are people who committed nonviolent offenses such as trespassing and are judged incapable of understanding their crimes, O’Keefe said.

The majority of involuntary admissions involve people deemed a danger to themselves — either because they may harm themselves deliberately or because self-neglect could lead to infections, homelessness or other problems, O’Keefe said. Two psychiatrists must approve involuntary admissions, most of which are transfers from community psychiatric hospitals.

Fewer than 20% of patients are considered a danger to others, and various strategies are used to stabilize them, including medications and in some cases temporary stays in a special treatment unit, O’Keefe said.

About a quarter of Pilgrim patients are black, much higher than the 9% of Long Island residents who are black. Currently, 63% of Pilgrim patients are white, 9% are Hispanic and less than 1% are Asian or American Indian, O’Keefe said. Those numbers can fluctuate, she said.

Nationwide, black adults are twice as likely as white adults to receive inpatient mental health care, according to a 2015 report by the federal Substance Abuse and Mental Health Services Administration.

Dr. Danielle Hairston, director of the residency program in psychiatry at Howard University in Washington, D.C., and president of the American Psychiatric Association’s Black Caucus, said that’s partly because black people with mental illness are less likely to seek treatment early on, and that can lead to worsening symptoms and inpatient admission. The reluctance stems from factors such as the dearth of black psychiatrists who black mentally ill people can relate to and generations of mistrust due to a long history of unjustified institutionalization of black people, she said.

In addition, Hairston said, studies show that a black person with similar symptoms of mental illness as a white person is more likely to be seen as psychotic, and aggressive and agitated, and in need of inpatient care — evidence of conscious and unconscious bias among psychiatrists.

The 273 patient beds at Pilgrim are less than half the 610 beds in 2008, but there are no plans to further reduce the number of patients, O’Keefe said.

Rogers thinks large institutions like Pilgrim should close and be replaced by small residences. People in large psychiatric centers are typically “forgotten,” don’t get adequate care and live under burdensome restrictions, he said.

“If somebody needs long-term support, that should be done in the community,” he said.

But Hancq contends it is not economically feasible for small community-based residences to have the specialized staff and expansive treatment programs of large state psychiatric centers.

At Pilgrim, there are dozens of classes tailored to individual needs, such as courses on how to become more assertive, how to make friends and how to control anger and avoid conflict. There are specialized programs, such as for people with a compulsion to drink so much water it can kill them.

A recreation center aids in therapy, as does a farm with goats, sheep, a llama, guinea pigs and rabbits, Berg said.

“Sometimes when we have nonverbal clients who have trouble forming associations, they learn to interact and form a relationship with the animals,” Berg said. “Animals are nonthreatening and they don’t yell back at you. Psychologists use that to form human relationships.”

A multisensory room with flashing lights, loud music, plastic tubes with bubbly water, a rocking chair, a disco ball and an “aroma fan” that emits calming scents is used especially for patients who are not responding as well to other treatment, he said.

Patients choose the type of music to play — or whether they even want music — and how much stimulation they want. There are drums to bang, wheels to turn and balls to squeeze for those who can benefit from it. The room’s features can make patients less anxious and more receptive to treatment, Berg said. Psychologists observe the patient, and they are ready to talk when the patient is, he said.

Jayette Lansbury, president of the Huntington chapter of the National Alliance on Mental Illness, a Virginia-based group that advocates for people with mental illness, said treatment at Pilgrim has benefited many people.

“I’ve heard nothing but good reviews from the patients’ point of view and their families’ point of view,” she said. “It’s a caring environment.”

Pilgrim and mental health through the decades

1931

Pilgrim State Hospital opens on 825 acres with 100 patients.

1949

Portuguese neurologist Egas Moniz receives a Nobel Prize for developing the surgery later known as a lobotomy, one of the extreme procedures used at Pilgrim and elsewhere that was later discredited.

1954

Pilgrim reaches its peak patient population of 13,875. It was then the largest psychiatric center in the world.

1963

Enactment of the Community Mental Health Act, which provides federal funding to build community-based mental-health centers. It — along with the introduction in the 1950s of more effective psychiatric medications and, later, Medicaid funding — helps lead to deinstitutionalization, the move of tens of thousands of mentally ill people out of large state institutions. Critics said there has never been enough money for community-based treatment and housing, so many people did not receive services.

1975

The U.S. Supreme Court rules that a person must be a danger to one’s self or others to be forcibly confined to a psychiatric center.

1992

There are 1,682 residents at Pilgrim.

1996

Central Islip and Kings Park psychiatric centers close. Services, patients transferred to Pilgrim.

2002

Developer Jerry Wolkoff buys 452 acres of Pilgrim property from the state. He later says he is planning 9,000 residential units and 4.4 million square feet of office and retail space for a project dubbed Heartland Town Square.

2008

Pilgrim patient population is 610.

2019

Judge dismisses Wolkoff suit against Suffolk County for not granting approval to connect the Heartland project with the Southwest Sewer District. Another lawsuit, filed by the Brentwood school district and others against Wolkoff and the Islip Town board to block the Heartland project, remains unresolved. Islip in 2017 gave approval to the first phase of Heartland.

2020

There are 273 patient beds at Pilgrim, with no plans to reduce the patient population further.

SOURCES: Pilgrim Psychiatric Center, New York State Office of Mental Health, U.S. Supreme Court, court records, Newsday reporting, Nobel Foundation